WHAT DEAF PEOPLE CAN
(AND CANT) DO:
a comparison of sensory disabilities
Whats the first reaction of most parents after learning that their baby is profoundly or severely deaf? They may be hurtled into a mixed state of shock, grief, and disbelief. Often, the first anguished thoughts that fly through their minds are something like these: Omigawd, my little Kimmy is deaf! She wont be able to hear speech, or enjoy TV or music, or listen to the radio! Will she be able to speak? Will she ever learn to say Mommy, I love you?
It is absolutely normal to have these thoughts and feelings, and they are the first step towards the process of learning how to be an effective parent to a deaf child.
RETHINKING THE LIMITS
What your deaf child cant do is relatively limited. What your deaf child can do is relatively unlimited. Two charts are posted below. The first one, Parents viewpoint, represents how parents of born-deaf babies tend to see themin terms of what they cannot do: not being able to hear sounds, which is considered a major handicap. When they think about their child being deaf, this is what they often think of: being unable to hear voices, or music, or bird songs, or warnings broadcast over a PA system.
The second chart, Deaf peoples viewpoint, answers the questions posed by parents. It represents how deaf people view themselvesin terms of the many things they can do. Profoundly and severely deaf people require communicative or technological assistance in three main areas: captioning for TV programs, news, and movies; telecommunications-relay services; and sign-language interpreters. (These are explained below the charts.) We also need to have directions and information jotted down for us when we cant understand a server, cashier, or bank teller, for instance. Otherwise, we get around just fine without any particular difficulties. Most of us are able-bodied and have complete mobility. Given early exposure to language and a good education, deaf people can be highly literate, educated, successful, productive members of societytaxpayers who live rewarding, independent lives.
Now, you may be thinking, Wont a cochlear implant improve the quality of my childs life? Will it help my little Jimmy live a more independent life? The answer is no. Even with an implant, Jimmy will still need some kind of technological and/or human assistance to gain full access to communication. The implant isnt going to do it all. In many cases, people who have cochlear implants still need to use relay services, interpreters (whether sign or oral), and captioning.
One thing we want to emphasize is that deaf children, teenagers, and adults can enjoy rich, full, and rewarding lives without implants. Some profoundly deaf people don't even use hearing aids. Important factors in deaf peoples success (without implants) are a stable, supportive home life, achievement-oriented parents, early literacy, and a good education. Our preference is for a strong sign-language foundation.
THE EXPENSE ACCOUNT
Isnt it costly to raise a deaf child? Entirely aside from the enormous expense of a cochlear implant, we dont believe that having a deaf child puts a heavy financial burden on a family. You may want to make some investments in assistive devices such as a visual smoke alarm, a doorbell flasher, a TTY, and hearing aids. Even though TTYs are now looked on as becoming outdated, they are still useful. Hearing aids should be considered optional, since not all deaf children derive significant benefit from them.
A FEW BEEPS ABOUT HEARING AIDS
Audiologists often prescribe hearing aids for toddlers and young children. They are often prescribed even for profoundly or severely deaf children to capitalize on whatever residual hearing they have, and to enhance their awareness of environmental sounds. (And if you decide on this, you need to take precautions with youngsters. Theyve been known to pull the tubing or cords apart, play with them, chew them, try to eat them, or even suck the earwax from the earmolds to try to clear them out. Children who were frustrated with their aids or angry at their parents have yanked their aids out, smashed them, or even flushed them down the toilet.) While we question the utility of aids for many severely and profoundly deaf children, since they may simply amplify noise without enhancing speech reception, they are at least removable and replaceable. Thats the great advantage of hearing aids. When Kimmy reaches high-school age, confident that shes old enough to make her own choices, and decides to stop wearing her aid, theres no scar, no electrodes or metal left inside her skull. If Kimmy decides that she wants a newer model, she can easily obtain one. She can try out different models and shell colors.
On the whole, deaf people utilize the same office and home technologies that hearing people do. These include computers, instant-messaging systems, E-mail, fax, and wireless text pagers. None of these are marketed specifically to deaf consumers, but they are extremely popular with deaf people.
Special mention must be given to the time-honored expedient of the pen or pencil and scratch pad or mini-notebook, which have facilitated many conversations between deaf and hearing people. Many hearing folks carry a pen and pad with them wherever they go, and so do a number of deaf people.
DEAFNESS COMPARED WITH OTHER DISABILITIES
These charts offer a quick comparison between a few general capabilities of persons with major types of sensory disabilities: deafness, blindness, and paraplegia/quadriplegia (partial or complete loss of sensation below the neck). The emphasis is on what they can do without human assistance or assistive devices. For simplicitys sake, both charts refer to persons with severe congenital disabilities, not to those with moderate or minor disabilitiese.g., hard-of-hearing or partially handicapped people. While color-blindness may affect ones vision and limit ones ability to hold certain jobs, it isnt considered a complete disability as blindness is. A color-blind person is still categorized as sighted. Persons who have partial (below-the-waist) paralysis may still be able to drive vehicles.
While blind persons may be able to participate in some physical games, sports, and activities, they need human and technological assistance with some everyday tasks, including navigating the streets and sidewalks, reading flat-copy text, and writing letters. Weve rarely seen blind people in shopping malls and restaurants, and never in supermarkets. Our observation is that blind people go to restaurants with friends, but not alone. Their food-shopping is done by assistants. Blind people can use public transportation (buses, taxis, trains, and planes) without any particular difficulties, but cannot drive. They can carry on conversations with Deaf people through tracking (tactile-manual communication).
People whose mobility is severely restricted may be able to use mouth-activated controls to operate computer keyboards and accomplish some tasks such as sending and receiving faxes. Like blind people, hearing quadriplegics can benefit from voice-recognition technology. People who use wheelchairs can participate in active sports, including the Paralympics. This includes basketball, hockey, swimming, and Alpine skiing.
Most deaf people (i.e., those without additional physical handicaps) can participate fully in physical activities. There are no limitations on their mobility. Deaf people have traditionally made good drivers. They can shop or travel anywhere by themselves. Deaf people need relatively little assistance, and the assistance they do need falls into the category of communications, not mobility. Deaf people can and do live independent, active, busy lives.
JUST WHAT DO WE NEED ASSISTANCE WITH?
Many TV programs are closed-captioned. Deaf people have enjoyed subtitled foreign films for many years. Theyre able to enjoy open-captioned English-language films in some cities. Many home videos have closed-captioning, as do many DVDs. Since DVDs with closed-captioned capability are marketed to the general public (deaf and hearing alike), we dont consider closed-captioning an assistive device. Open-captioned movies, which are marketed towards deaf viewers, could possibly be considered an assistive device.
But captioning, from a social perspective, is no longer seen solely as a deaf aid. Its benefits to the hearing population are many, and have been publicized. For example, captioning has been utilized by hearing people learning English as a second language, and by U.S.-born adult learners working to improve their literacy. And theres another significant incentive for having more captioning available in public places: growing public awareness about (and outcry against) noise pollution, widespread concerns about the psychological and physiological ill-effects of urban noise, and a crackdown on public and private sources of unacceptable noise levels by municipal statutes and law-enforcement agencies. (In several citiesand this is a growing trendcars, trucks, and even single-family homes can be monitored by police with hand-held noise-level meters, and the offenders ticketed and fined.) People want a quieter environment, even in cities. Public facilities such as airports and bars with TVs have been urged, and in some cases, required, to reduce noise levels by turning down the volume and turning on the captioning, and patrons of these establishments appreciate it.
Sports bars that have several TVs displaying several channels simultaneously have found that its much easier to use captioning to enable all patrons to understand and enjoy their favorite channelsand patrons who dont want to listen to any TV at all can sit nearby without being disturbed. Even in laundromats, where the sound of dozens of washers and dryers thumping away in unison can drown out the sound on the wall-mounted TV, you will often find the captioning on.
Speaking of a quieter environment, captioning has been found to promote tranquility in the home. If Hubby wants to go to sleep early, but Wifey wants to watch a late movie, and theyre sharing the same bed, captioning makes it possible for both to have their way. If parents want to watch a new DVD in the living room without waking up the baby or disturbing the kids, captioning enables them to do so without sacrificing much of the enjoyment.
We are confident that, with the widespread social acceptance of captioning, it will eventually become a universal fixture on public TV setups, outdoor videos, etcetera, something taken for granted, just as hearing folks take TV and radio and electric lights for granted. So its really not something whose benefits are limited to deaf people only. Hearing people get plenty of benefit, too. When captioning becomes as universal as the lightbulb, deaf people wont need to lobby for it anymore. When we no longer have to worry about the provision of captioning, we can refocus on our remaining needs: access to telecommunications and sign-language interpreting. The current laws mandating caption chips in most television sets manufactured anywhere in the world since 1993 may be superseded by even broader legislation governing all video media. Were not quite there yet, but the day is coming.
TELECOMMUNICATIONS RELAY SERVICES
The development of the acoustic coupler made it possible for deaf people to communicate over the telephone. Originally, they used TTYs (teletypewriters or text telephones) to communicate with other TTY users. The establishment of statewide and international 24/7 telephone-relay services broadened our options considerably. TTYs have been deaf peoples favorite assistive device for the past 30 or so years, but are declining in popularity as other telecommunication options, such as Internet relay, are gaining. You may not need to purchase a separate TTY at all.
SIGN-LANGUAGE INTERPRETERS AND C.A.R.T.
Most postgraduate institutions in the U.S.A. are affected by the statutes of the Americans with Disabilities Act. They must make their classes, lectures, films, etc., accessible to deaf students. This is accomplished in various ways: by having support services such as a sign-language interpreter and a notetaker. In some colleges, computer-assisted real-time captioning (CART) is used to provide deaf students with a complete transcript of the instructors lecture and class discussion. (CART, incidentally, was used in courtrooms to provide transcripts of the proceedings, and was borrowed for classroom use with deaf students. Real-time captioning employs highly trained stenocaptioners, many of whom were trained as court reporters.)
It is sometimes difficult to get hold of sign interpreters, but hospitals, clinics, libraries, courts, schools, colleges, etc., are required to provide them when needed.
A FINAL NOTE
You need encouragement and support just as much as your deaf child does. Remember, if you have questions about your childs learning patterns, quirks, capabilities, or future, the real experts are deaf adults. Ask them. You should also network with other parents of deaf children. The challenges of parenting are formidable, but theyre made easier when you have a support system.
For Parents Only | Myths & Facts | Deaf can do
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